The trustees of the Ten Percent Foundation decided to donate £500 to the Ichthyosis Support Group. The group was set up by people affected in some way by ichthyosis.
The ISG currently has over 1600 members of which it supports individuals and families affected by ichthyosis. The ISG has previously provided grants for research into Netherton Syndrome, Harlequin ichthyosis, and Lamellar ichthyosis as well as others. The aim is to continue to make a research grant available for ichthyosis research.
What is Ichthyosis?
Ichthyosis is a group of skin disorders that lead to dry, itchy skin that appears scaly, rough, and red. The symptoms can range from mild to severe. Ichthyosis can affect only the skin, but some forms of the disease can affect internal organs as well.
What are the charity’s aims?
To promote and protect the physical and mental health of sufferers of ichthyosis and any associated condition in the United Kingdom and Ireland through the provision of financial assistance, support, education and practical advice;
To advance the education of the general public and medical profession in all areas relating to ichthyosis and any related condition, and its implication for the family;
To promote research into the management of ichthyosis and any related condition and to publish the useful results of that research, and to support organisations worldwide promoting research into ichthyosis.
How will the donation help?
“The money will be allocated to our children’s camps, we held 2 last year and are planning 2 again this year.” Liz Dale, Manager ISG.
For further details about the charity please visit their website here: https://www.ichthyosis.org.uk/