Huntington's Disease Association

£500 Donation to the Huntington’s Disease Association

The Ten Percent Group donates £500 to the Huntington’s Disease Association via the Ten Percent Foundation, our charitable trust set up in 2003 to handle company donations of 10% of net profits, something we have done for over 25 years.

Nominated by Catherine Charlwood, from the University of Exeter, the Ten Percent Foundation have recently donated £500 to the Huntington’s Disease Association. Bridget Waters, the Trusts & Foundations Manager at the charity, said: “Your £500 donation will deliver two activity days for children and young people in Wales. Children and young people tell us how much they value these events. They make supportive friendships by coming together in this way.” Bridget has also given us the information below.

Background

The Huntington’s Disease Association is the only charity that supports people affected by this profoundly disabling disease across England and Wales. Our vision is a better life for anyone affected by Huntington’s disease. Established in 1971 as a peer support group and registered as a charity in 1987, we have worked with and for the Huntington’s community for over 50 years and remain community-led. Last year, we supported over 5,000 people affected by Huntington’s disease and Juvenile Huntington’s disease.

Youth Engagement Service

HDYES is the charity’s Youth Engagement Service that supports children and young people aged 8 – 25 who are affected by Huntington’s disease. This profoundly disabling and rare disease destroys brain cells and affects movement, behaviour and mental health. There is no treatment or cure and the disease is terminal. Because this rare neurological disease is inherited from a parent, it can impact many members of the same family. Children and young people in Huntington’s disease families may be living with a parent who has the disease. They may have caring responsibilities for a parent, other family members and/or siblings. Home life can be complex and chaotic. They may already have lost family members to the disease. And they may be worried about their own risk of inheriting the disease and what the future holds for them. HDYES provides direct support from our team of four regional Youth Workers.

Experiences

Joe, a member of HD Youth Voice, told us: “HD Youth Voice has taught me that just because someone might be quiet doesn’t mean they’re alright. HD Youth Voice has given us a space to talk about similar experiences we all have.” Chloe, a member of HD Youth Voice and a Board member for the charity told us: “You’re not alone and there’s such a lovely, genuine, friendly community of people here. As young people, we can have a huge impact on how the next generation deals with this condition. By speaking up, we have the potential to change lives.” Elaine has Huntington’s disease. Her daughter Charlotte has tested positive for the gene and will go on to develop symptoms. Elaine told us how HDYES has helped Charlotte, saying: “I feel less anxious because I know that she can reach out to people her age. It has changed her life. She has a sparkle there.”

Funding

We receive less than 2% of our funding from statutory sources. The majority of our funding comes from our amazing community through individual donations, community fundraising, challenge events, in memory giving and legacy giving. We also receive support from trusts and foundations, mainly through smaller grants from family trusts. The National Lottery Community Fund is supporting 43% of project costs for our delivery of HDYES in England only. Your donation would help to deliver activity events for children and young people in Wales. We currently receive no funding towards HDYES in Wales.

HD Youth Voice co-produced our ‘You are not alone’ film. The film was a Finalist in the Smiley Awards 2025.

https://www.hda.org.uk/information-and-support/information-resources/blogs-and-stories/you-are-not alone-a-powerful-new-film-created-by-hdyv/

We have 53 staff, 39 full-time and 14-part-time. We have 190 volunteers.

What is this all about?

Ten-Percent Legal, Interim Lawyers, and Jonathan Fagan Business Brokers donate 10% of annual net profits to charity via the Ten Percent Foundation, a charitable trust set up by our group of companies to distribute monies to charities in the UK and Africa. We have been doing this for over 25 years. The Foundation never incurs any administration costs (other than Triodos bank charges, which are minimal). All monies donated are distributed to charities and community organisations.

www.tenpercentfoundation.org

Why do we donate?

We set up our companies over 25 years ago with the intention of being ethical in everything we do. As part of this, we decided that a percentage of our profits should always be earmarked for charitable work and set the rate at ten percent. A sudden burst of inspiration meant we called ourselves the Ten Percent Group.